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International Journal of Academic Research in Accounting, Finance and Management Sciences

Open Access Journal

ISSN: 2225-8329

Exploring the Financial and Time Management Strategies of Parents of Children with Autism Spectrum Disorder (ASD)

Norulhuda Sarnon, Lavihnnya Loganathan, Mohd Suhaimi Mohammad, Salina Nen, Nor Jana Saim

http://dx.doi.org/10.6007/IJARAFMS/v14-i4/24226

Open access

This study aims to explore the experiences of parents with children who have Autism Spectrum Disorder (ASD) in two crucial areas that influence caregiving: financial strategy and time management. This qualitative study uses a phenomenological approach and involves in-depth interviews with five primary caregivers, specifically mothers or fathers. The informants, who are parents, have at least seven years of experience caring for children with autism, aged between 30 and 50 years, are currently employed, and reside in Selangor. The findings identified four main themes in financial strategies: selecting care centres within financial means, taking on additional work, utilizing government assistance programs, and practicing prudent budgeting. Meanwhile, three themes for time management strategies practiced by parents of children with ASD were alternating work schedules between spouses, organizing priorities between work and caring for ASD children, and prioritizing the routine needs of ASD children to ensure quality care after working hours. The findings of this study demonstrate how financial strategies and time management practices adopted by parents with ASD children can influence the quality of caregiving and their daily lives. The goal of this study is to help parents of children with ASD deal with difficult time and money management problems by offering them better advice.

Befkadu, B. Adamek, M. E. & Ero, D. (2022). The financial challenges of parents of a child with autism in Addis, Ababa, Ethiopia: A qualitative study. Integrated Journal for Research in Arts and Humanities 2(1): 5–10.
Benson, A. (2021). Employment Decisions in Mothers of Children with Autism Spectrum Disorder. https://repository.tcu.edu/handle/116099117/49049
Bujang, N. A., Jima’ain, M. T., & Saari, Z. (2020). Penerapan Konsep IKHLAS dalam menyantuni anak istimewa (autisme)(Implementation of IKHLAS Concept in treating special needs). UMRAN-Journal of Islamic and Civilizational Studies, 6(3-2).
Davy, G., Unwin, K. L., Barbaro, J., & Dissanayake, C. (2022). Leisure, employment, community participation and quality of life in caregivers of autistic children: A scoping review. Autism, 26(8), 1916-1930.
Goh, J. X., Aishworiya, R., Ho, R. C. M., Wang, W., & He, H. G. (2021). A qualitative study exploring experiences and support needs of parents of children with autism spectrum disorder in Singapore. Journal of clinical nursing, 30(21-22), 3268-3280.
Han, Y. L., Wan Sulaiman, W. S., & Ahmad Badayai, A. R. (2024). Efficacy of CEITA early intervention program for young children with autism spectrum disorders: A randomized controlled trial design. F1000Research, 13, 395.
Kartini,I, Cornish, K., Park, M. S. A., Hasnah, T, & Golden, K. J. (2019). Risk and resilience among mothers and fathers of primary school age children with ASD in Malaysia: A qualitative constructive grounded theory approach. Frontiers in Psychology, 9, 2275-2294.
Kütük, M. Ö., Tufan, A. E., K?l?çaslan, F., Güler, G., Çelik, F., Alt?nta?, E., & Kütük, Ö. (2021). High depression symptoms and burnout levels among parents of children with autism spectrum disorders: A multi-center, cross-sectional, case–control study. Journal of autism and developmental disorders, 1-14.
Landon, J., Shepherd, D., & Goedeke, S. (2018). Predictors of satisfaction with life in parents of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 48, 1640-1650.
Larson, J. (2022). Workplace Experiences of Parents of Children with ASD. In Generation A: Perspectives on special populations and international research on autism in the workplace (pp. 23-44). Emerald Publishing Limited.
Liao, X., & Li, Y. (2020). Economic burdens on parents of children with autism: a literature review. CNS spectrums, 25(4), 468-474.
Lynch, F. L., Bulkley, J. E., Varga, A., Crawford, P., Croen, L. A., Daida, Y. G., & Dickerson, J. F. (2023). The impact of autism spectrum disorder on parent employment: results from the r?Kids study. Autism Research, 16(3), 642-652.
Marsack-Topolewski, C. N., & Samuel, P. S. (2024). Experiences of Parental Caregivers of Adults with Autism in Navigating the World of Employment. Journal of Autism and Developmental Disorders, 1-11.
Mohd Suhaimi, M. & Nur Natasha Amelia, R. (2018). Hubungan antara tingkah laku keibubapaan, tekanan psikologikal dengan tahap kesihatan mental dalam kalangan penjaga kanak-kanak autisme. Jurnal Psikologi Malaysia 32(4): 123–132.
Mud, S. C., Sham, F. M., & Ali, M. M. (2021). Kaedah pengawalan tingkah laku bagi anak mengalami Autisme: Controlling methods of tantrum behaviour for children with Autism. Al-Irsyad: Journal of Islamic and Contemporary Issues, 6(2), 733-744.
Muhammad Haziq, M. S & Nurul Akma, J. (2019). Cabaran ibu bapa Bersama kanak- kanak kecelaruan spektrum autisme (ASD): Tinjauan literatur. Jurnal Sains Sosial 4(1): 33–43.
Nur Amira & Mohd Syazwan, Z. (2024). A systematic literature review of qualitative studies exploring parents’ experiences post-diagnosis of autism
International Journal of Academic Research in Progressive Education and Development; 13 (3) : 1918 – 1931
Nur Farahana, I. & Manisah, M.A. (2020). Meneroka cabaran yang dihadapi oleh ibu dalam menguruskan anak berkeperluan khas. Journal of Quran Sunnah Education and Special Needs 4(2): 63–75.
Nurdiyana,L., Wan Arnidawati W.A., Hasnah,T., Aizan Sofia, A., & Roslinda. A. (2021). Challenges and support for parents of children with autism spectrum disorder at work. International Journal of Academic Research in Business and Social Sciences 11(12): 655–669.
Ozdemir, N. K., & Koç, M. (2023). Career adaptability of parents of children with autism spectrum disorder. Current Psychology, 42(17), 14320-14333.
Papadopoulos, D. (2021). Mothers' experiences and challenges raising a child with autism spectrum disorder: A qualitative study. Brain sciences, 11(3), 309.
Razuan, N. H. M., Aun, N. S. M., & Fazree, S. D. M. (2023). Relationship Between Knowledge and The Level of Stress among Caregivers with Autism Spectrum Disorder (ASD) Children. International Journal of Academic Research in Business & Social Sciences, 13(6), 1106-1117.
Saptyasari, A. (2020). Communication between Husband and Wife in Negotiating a Parenting Role for their Child with Autism Spectrum Disorder (ASD). Jurnal Komunikasi Indonesia, 9(2), 89-97.
Sazlina,K., Hasnah,T., Suziyani, M., & Nazmin, A. (2018). The economic burden of families with autism spectrum disorders (ASD) children in Malaysia. Journal of ICSAR 2(1): 71–77.
Siti Marziah, Z., & Nor Shahirah, M.T. (2018). Cabaran membesarkan anak-anak autisme daripada perspektif ibu. Jurnal Psikologi Malaysia 32(1): 58–71.
Soytaç, E., Kahraman, T., & Genç, A. (2022). Pain, anxiety, depression, fatigue, sleep quality, and health-related quality of life in the mothers of children with autism spectrum disorder and the mothers of typically developing children: A Case-control study. Pain.
Turnage, D., & Conner, N. (2022). Quality of life of parents of children with Autism Spectrum Disorder: An integrative literature review. Journal for Specialists in Pediatric Nursing, 27(4), e12391.
Ying, L. P. Y., & Mohamed, S. (2023). Perancangan Masa Depan Kanak-Kanak dengan Kecelaruan Spektrum Autisme (ASD): Perspektif Ibu Bapa. Malaysian Journal of Social Sciences and Humanities (MJSSH), 8(2), e002116-e002116.
Zulkefli, N. A., & Mohamad Aun, N. S. (2024). Kelesuan Melampau dan Sokongan Sosial Dalam Kalangan Ibu Bapa Kanak-Kanak Autisme; e-BANGI Journal, 21(3).

Sarnon, N., Loganathan, L., Mohammad, M. S., Nen, S., & Saim, N. J. (2024). Exploring the Financial and Time Management Strategies of Parents of Children with Autism Spectrum Disorder (ASD). International Journal of Academic Research in Accounting, Finance and Management Sciences, 14(4), 1098–1114.