Understanding the Counselling Support Needs of Elderly Caregivers in Malaysia

Abdullah, F. (2009). Isu dan cabaran penjagaan tidak formal. Malaysian Journal of Social Administration, 6, 73–86.
Adelman, R. D., Tmanova, L. L., Delgado, D., Dion, S., & Lachs, M. S. (2014). Caregiver burden: A clinical review. JAMA, 311(10), 1052-1059. https://doi.org/10.1001/jama.2014.304
Akosile, C. O., Okoye, E. C., & Odunowo, O. K. (2009). Carers’ burden in stroke and some associated factors in a south-eastern Nigerian population. African Journal of Neurological Sciences, 28(2).
Alavi, K. (2007). Pengalaman anak dewasa berpendapatan rendah yang menjaga ibu bapa tua: Satu pendekatan berteraskan pendidikan komuniti. Kajian Malaysia, 25, 55–74.
Alavi, K., & Sail, R. M. (2010). Peranan wanita melayu dalam proses penjagaan ibu bapa tua: Dilema dan cabaran dalam era globalisasi. Kajian Malaysia, 28(2), 71–105.
Aldous, J. (1994). Someone to watch over me: Family responsibilities and their realization across family lives. In Family caregiving across the lifespan (pp. 42-68). https://doi.org/10.4135/9781452243238.n2
Aneshensel, C. S., Pearlin, L. I., Mullan, J. T., Zarit, S. H., & Whitlatch, C. J. (1995). Profiles in caregiving: The unexpected career. Academic Press.
Anuar, N. H., Mahmud, Z., & Karim, D. N. F. M. (2019). Informal caregiving of senior parents in Malaysia: Issues & counselling needs. International Journal of Innovation, Creativity and Change, 5(6), 408-420.
Bloomberg, L. D., & Volpe, M. (2008). Completing your qualitative dissertation: A roadmap from beginning to end. Sage Publications. https://doi.org/10.4135/9781452226613
Bom, J., Bakx, P., Schut, F., & Doorslaer, E. (2018). The impact of informal caregiving for older adults on the health of various types of caregivers: A systematic review. The Gerontologist, 59, 629-642. https://doi.org/10.1093/geront/gny137
Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77-101. https://doi.org/10.1191/1478088706qp063oa
Buchanan, R., & Huang, C. (2013). The need for mental health care among informal caregivers assisting people with multiple sclerosis. International Journal of MS Care, 15(2), 56-64. https://doi.org/10.7224/1537-2073.2012-030
Carter, R. (2007). Addressing the caregiving crisis. Preventing Chronic Disease, 4(1), A26.
Chakraborty, R., Jana, A., & Vibhute, V. M. (2023). Caregiving: A risk factor of poor health and depression among informal caregivers in India - A comparative analysis. BMC Public Health, 23(1), 42. https://doi.org/10.1186/s12889-022-14880-5
Cheng, H. Y., Chair, S. Y., & Chau, J. P. (2014). The effectiveness of psychosocial interventions for stroke family caregivers and stroke survivors: A systematic review and meta-analysis. Patient Education and Counseling, 95(1), 30-44.
https://doi.org/10.1016/j.pec.2014.01.005
Chew, E. Y. H., Ong, Z. L., Glass, G. F., Jr., & Chan, E.-Y. (2022). ‘24/7’ caregiving: A qualitative analysis of an emerging phenomenon of interest in caregiving. International Journal of Environmental Research and Public Health, 19(24), 17046.
https://doi.org/10.3390/ijerph192417046
Conway, K. (2019). The experience of adult children caregiving for aging parents. Home Health Care Management & Practice, 31(2), 92-98.
https://doi.org/10.1177/1084822318803559
Converso, D., Sottimano, I., Viotti, S., & Guidetti, G. (2020). I’ll be a caregiver-employee: Aging of the workforce and family-to-work conflicts. Frontiers in Psychology, 11, 246. https://doi.org/10.3389/fpsyg.2020.00246
Creswell, J. W., & Creswell, J. D. (2018). Research design: Qualitative, quantitative, and mixed methods approaches (5th ed.). Thousand Oaks, CA: SAGE Publications.
Cutler, L. (1985). Counseling caregivers. Generations: Journal of the American Society on Aging, 10(1), 53-57. http://www.jstor.org/stable/44875305
Department of Statistics Malaysia. (2023). Retrieved from https://www.dosm.gov.my
Dixe, M. A. C. R., da Conceição Teixeira, L. F., Areosa, T. J. T. C. C., Frontini, R. C., Peralta, T. J. A., & Querido, A. I. F. (2019). Needs and skills of informal caregivers to care for a dependent person: A cross-sectional study. BMC Geriatrics, 19, 255. https://doi.org/10.1186/s12877-019-1274-0
Dhar, R. L. (2012). Caregiving for elderly parents: A study from the Indian perspective. Home Health Care Management & Practice, 24(5), 242-254. https://doi.org/10.1177/1084822312439466
Duangjina, T., Fink, A. M., & Gruss, V. (2022). Resilience in family caregivers of Asian older adults with dementia: A concept analysis. Advances in Nursing Science, 45(1), 1-16. https://doi.org/10.1097/ANS.0000000000000471
Frias, C. E., Garcia-Pascual, M., Montoro, M., Ribas, N., Risco, E., & Zabalegui, A. (2020). Effectiveness of a psychoeducational intervention for caregivers of people with dementia with regard to burden, anxiety and depression: A systematic review. Journal of Advanced Nursing, 76(3), 787-802. https://doi.org/10.1111/jan.14286
Gautam, P., Venkatesan, B., Kumar, N., & Maheswari, B. U. (2022). Caregivers’ experiences in caring for the elderly. RGUHS Journal of Nursing Sciences, 12(2), 180-185. https://doi.org/10.26715/rjns.12_2_5
Gouin, J. P., da Estrela, C., Desmarais, K., & Barker, E. T. (2016). The impact of formal and informal support on health in the context of caregiving stress. Family Relations, 65(1), 191-206. https://doi.org/10.1111/fare.12183
Gray-Davidson, F. (2002). The caregiver’s sourcebook. McGraw-Hill Companies.
Greenfield, J. C., Hasche, L., Bell, L. M., & Johnson, H. (2018). Exploring how workplace and social policies relate to caregivers’ financial strain. Journal of Gerontological Social Work, 61(8), 849-866. https://doi.org/10.1080/01634372.2018.1487895
He, L., Wu, H., Li, M., & Deng, X. (2022). A qualitative meta-synthesis of the caregiving experiences of adult children providing care for cancer patients in China: Implications for multidisciplinary healthcare teams. Health and Social Care in the Community, 30(6), 3829-3842. https://doi.org/10.1111/hsc.14073
Houts, P. S., Nezu, A. M., Nezu, C. M., & Bucher, J. A. (1996). The prepared family caregiver: A problem-solving family caregiver education approach. Patient Education and Counseling, 27(1), 63-73. https://doi.org/10.1016/0738-3991(95)00790-3
Jawahir, S., Tan, E., Tan, Y., Noh, S., & Rahim, I. (2021). The impacts of caregiving intensity on informal caregivers in Malaysia: Findings from a national survey. BMC Health Services Research, 21, 664. https://doi.org/10.1186/s12913-021-06412-5
Kang, S. (2021). Financial strain among unpaid family caregivers of frail elders in community. Journal of Human Behavior in the Social Environment, 31(5), 582-598. https://doi.org/10.1080/10911359.2020.1799900
Kementerian Pembangunan Wanita, Keluarga Dan Masyarakat. (2008). Dasar Kesihatan Warga Emas Negara.
Krieger, T., Feron, F., & Dorant, E. (2017). Developing a complex intervention programme for informal caregivers of stroke survivors: The caregivers' guide. Scandinavian Journal of Caring Sciences, 31(1), 146-156. https://doi.org/10.1111/scs.12344
Levine, C., Hunt, G. G., Halper, D., Hart, A. Y., Lautz, J., & Gould, D. A. (2005). Young adult caregivers: A first look at an unstudied population. American Journal of Public Health, 95(11), 2071-2075. https://doi.org/10.2105/AJPH.2005.067702
Luichies, I., Goossensen, A., & van der Meide, H. (2021). Caregiving for ageing parents: A literature review on the experience of adult children. Nursing Ethics, 28(6), 844-863. https://doi.org/10.1177/0969733019881713
Mahamod, Z. (2004). Strategi pembelajaran bahasa Melayu di kalangan pelajar sekolah menengah [Unpublished doctoral dissertation]. Universiti Kebangsaan Malaysia.
Martín-Carrasco, M., Martín, M. F., Valero, C. P., Millán, P. R., García, C. I., Montalbán, S. R., Vázquez, A. L., Piris, S. P., & Vilanova, M. B. (2009). Effectiveness of a psychoeducational intervention program in the reduction of caregiver burden in Alzheimer's disease patients' caregivers. International Journal of Geriatric Psychiatry, 24(5), 489-499. https://doi.org/10.1002/gps.2142
Mata, A., Mickens, M., Dassel, K., & Utz, R. (2020). Unsung heroes: Caregiver experiences during COVID-19. Innovation in Aging, 4(1), 961.
https://doi.org/10.1093/geroni/igaa057.3512
Merriam, S. B., & Tisdell, E. J. (2016). Qualitative research: A guide to design and implementation (4th ed.). Jossey-Bass.
Merrill, D. M. (1997). Caring for elderly parents: Juggling work, family, and caregiving in middle and working-class families. Auburn House/Greenwood Publishing.
Meurs, M., & Giddings, L. (2021). Elder care and paid work: Gender differences in the relationship between unpaid elder care work and employment in Bulgaria. Journal of European Social Policy, 31(2), 223–238. https://doi.org/10.1177/0958928720974181
Morrow, S. (2005). Quality and trustworthiness in qualitative research in counseling and psychology. Journal of Counseling Psychology, 52(2), 250–260.
Mulok, N. S. A., Kashim, N. N., Abidin, S. N. Z., Hadi, M. S. A., Mahmud, Z., & Karim, D. N. F. M. (2016). Psikopendidikan kelompok dalam kalangan warga emas. In W. M. W. Jaafar, A. F. M. Ayub, & T. Sulaiman (Eds.), Prosiding Persidangan Kaunseling & Kerjaya 2016 (pp. 12–16). Bandar Baru Bangi: Pertubuhan Penyelidikan dan Pendidikan Pendidik Malaysia.
National Alliance for Caregiving, & American Association for Retired Persons. (2009). Caregiving in the U.S. 2009.
https://www.caregiving.org/data/Caregiving_in_the_US_2009_full_report.pdf
Nayan, S. (2006). Keprihatinan yang luntur terhadap warga emas. Jurnal Intelek URDC UiTM Perlis, 4(1), 95–105.
Niimi, Y. (2021). Juggling paid work and elderly care provision in Japan: Does a flexible work environment help family caregivers cope? Journal of The Japanese and International Economies, 62. https://doi.org/10.1016/j.jjie.2021.101171
Nolan, M., & Petrakis, M. (2019). Delivering family psychoeducation at the mental health acute inpatient service: A practitioner narrative. Journal of Psychiatric and Mental Health Nursing, 26(3–4), 101–107. https://doi.org/10.1111/jpm.12516
Ostbye, T., Chan, A., Malhotra, R., & Kothalawala, J. (2010). Adult children caring for their elderly parents. Asian Population Studies, 6(1), 83–97.
https://doi.org/10.1080/17441731003603504
Othman, N. H., Mahmud, Z., & Karim, D. N. F. M. (2019). Family caregivers for cancer patients. Indian Journal of Public Health Research and Development, 10(6), 1521–1526. https://doi.org/10.5958/0976-5506.2019.01514.6
Plöthner, M., Schmidt, K., de Jong, L., Zeidler, J., & Damm, K. (2019). Needs and preferences of informal caregivers regarding outpatient care for the elderly: A systematic literature review. BMC Geriatrics, 19(1), 82. https://doi.org/10.1186/s12877-019-1068-4
Pfeiffer, K., Theurer, C., Büchele, G., & ReDiCare Study Group. (2021). Relieving distressed caregivers (ReDiCare study): Study protocol of a randomized pragmatic trial. BMC Geriatrics, 21(4). https://doi.org/10.1186/s12877-020-01941-w
Rajovi?, T., & Mili?, N. (2022). Mental health of informal caregivers. Medicinski Podmladak, 73(3), 8–11. https://doi.org/10.5937/mp73-37522
Sabat, S. R. (2016). Flourishing of the self while caregiving for a person with dementia: A case study of education, counseling, and psychosocial support via email. Gerontology, 10(1), 81–97. https://doi.org/10.1177/1471301210392986
Sarkhel, S., Singh, O. P., & Arora, M. (2020). Clinical practice guidelines for psychoeducation in psychiatric disorders: General principles of psychoeducation. Indian Journal of Psychiatry, 62(2), 319–323.
https://doi.org/10.4103/psychiatry.IndianJPsychiatry_780_19
Selwood, A., Johnston, K., Katona, C., Lyketsos, C., & Livingston, G. (2007). Systematic review of the effect of psychological interventions on family caregivers of people with dementia. Journal of Affective Disorders, 101(1-3), 75-89.
https://doi.org/10.1016/j.jad.2006.10.025
Sheung-Tak, C., Au, A., Losada, A., Thompson, L. W., & Gallagher-Thompson, D. (2019). Psychological interventions for dementia caregivers: What we have achieved, what we have learned. Current Psychiatry Reports, 21(7), 59. https://doi.org/10.1007/s11920-019-1045-9
Schulz, R., & Sherwood, P. R. (2008). Physical and mental health effects of family caregiving. The American Journal of Nursing, 108(9), 23–27.
https://doi.org/10.1097/01.NAJ.0000336406.45248.4c
Son, C.-H. (2021). Physical and Mental Health Effects of Characteristics of Caregivers and the Caregiving Situation. Archives of Business Research, 9(7), 116–139.
https://doi.org/10.14738/abr.97.10555
Sörensen, S., Pinquart, M., & Duberstein, P. (2002). How effective are interventions with caregivers? An updated meta-analysis. The Gerontologist, 42(3), 356–372. https://doi.org/10.1093/geront/42.3.356
Spillman, B. C., & Long, S. K. (2009). Does high caregiver stress predict nursing home entry? Inquiry, 46(2), 140–161. https://doi.org/10.5034/inquiryjrnl_46.02.140
Toner, M. A., & Shadden, B. B. (2002). Counseling challenges: Working with older clients and caregivers. Contemporary Issues in Communication Science and Disorders, 29, 68–78. https://doi.org/10.1044/cicsd_29_S_68
Toseland, R. W., & Smith, G. C. (1990). Effectiveness of individual counseling by professional and peer helpers for family caregivers of the elderly. Psychology and Aging, 5(2), 256-263.
United Nations, Department of Economic and Social Affairs, Population Division. (2019). World population prospects 2019: Highlights (ST/ESA/SER.A/423). https://population.un.org/wpp/Publications/Files/WPP2019_Highlights.pdf
United Nations, Department of Economic and Social Affairs, Population Division. (2019). World population ageing 2019: Highlights (ST/ESA/SER.A/430). https://digitallibrary.un.org/record/3846855/files/WorldPopulationAgeing2019-Highlights.pdf
United Nations, Economic and Social Commission for Asia and the Pacific. (2017). Ageing in Asia and the Pacific: Overview. https://www.unescap.org/resources/ageing-asia-and-pacific-overview
Washio, M., Toyoshima, Y., Miyabayashi, I., & Arai, Y. (2019). Burden among family caregivers of older people who need care in Japan. In M. Washio & I. Miyabayashi (Eds.), Health issues and care system for the elderly (pp. 17–32). Singapore: Springer. https://doi.org/10.1007/978-981-13-1762-0_2
Yamamoto, N., & Wallhagen, M. I. (1997). The continuation of family caregiving in Japan. Journal of Health and Social Behavior, 38(2), 164–176.
https://doi.org/10.2307/2955423
Yiming, P., & Lina, M. (2023). Physical frailty. In P. J. Oliveira & J. O. Malva (Eds.), Aging: From fundamental biology to societal impact (pp. 493-521). Academic Press. https://doi.org/10.1016/B978-0-12-823761-8.00004-5
Yin, E. H. C., Zhi, L. O., Glass, G. F., Jr., & Ee-Yuee, C. (2022). '24/7' caregiving: A qualitative analysis of an emerging phenomenon of interest in caregiving. International Journal of Environmental Research and Public Health, 19(24), 17046.
https://doi.org/10.3390/ijerph192417046

(Anuar et al., 2024)
Anuar, N. H., Amat, S., & Mahmud, M. I. (2024). Understanding the Counselling Support Needs of Elderly Caregivers in Malaysia. International Journal of Academic Research in Business & Social Sciences, 14(6), 1790–1804.

Copyright: © 2024 The Author(s)
Published by HRMARS (www.hrmars.com)
This article is published under the Creative Commons Attribution (CC BY 4.0) license. Anyone may reproduce, distribute, translate and create derivative works of this article (for both commercial and non-commercial purposes), subject to full attribution to the original publication and authors. The full terms of this license may be seenavc at: http://creativecommons.org/licences/by/4.0/legalcode