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International Journal of Academic Research in Progressive Education and Development

Open Access Journal

ISSN: 2226-6348

A Systematic Literature Review of Qualitative Studies Exploring Parents’ Experiences Post-Diagnosis of Autism

Nur Amira, Mohd Syazwan Zainal

http://dx.doi.org/10.6007/IJARPED/v13-i3/22177

Open access

The global rise in Autism Spectrum Disorder (ASD), including Malaysia, has significantly impacted parents both mentally and physically. Creating a holistic support system for parents immediately following an ASD diagnosis is crucial, providing them with the necessary tools to navigate challenges, reduce stress, and make informed decisions for their children's future. Hence, this systematic literature review aims to explores parents’ post-diagnosis experiences. Guided by Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) protocol, this study selected articles from two databases namely Scopus and Web of Science. Based on the thematic analysis, three main themes were identified: (1) parents' emotions, (2) support systems and (3) treatments and school. Furthermore, this study aims to offered significant views and understanding of the challenges experienced by the parents. Future research suggestions were discussed to foster a more informed and supportive environment for the parents of the ASD children.

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(Amira & Zainal, 2024)
Amira, N., & Zainal, M. S. (2024). A Systematic Literature Review of Qualitative Studies Exploring Parents’ Experiences Post-Diagnosis of Autism. International Journal of Academic Research in Progressive Education and Development, 13(3), 1918–1931.