ISSN: 2222-6990
Open access
This article focuses on the psychological well-being of female, particularly mothers, who are responsible for caring children with disabilities. Mothers frequently struggle to provide care for their children with disabilities due to overwhelming demands that exceed their ability. These challenges negatively impact every aspect of life, resulting in significant psychological stress for mothers. Therefore, this article aims to elaborate the concept of psychological well-being of female caregivers who provide care for children with disabilities and factors related to it. This article employed content analysis technique to describe the concepts, ideas, and issues that are relevant to the factors of psychological well-being of these female caregivers. Female caregivers who have strong psychological well-being and have children with disabilities are expected to effectively handle their caregiving tasks and enhance the mental health of their children. On the other hand, female caregivers with low psychological well-being may face difficulties in effectively handling the responsibilities of parenting due to heightened stress levels. The challenges may exacerbate the caregiver's psychological well-being, potentially leading to negative consequences for the child. Aspects associated with their children, caregiver-related characteristics, and their environment significantly influence the well-being of mothers. Consequently, prioritising one's own well-being can lead to improve quality of care, better outcomes for the child facing challenges, and enhanced well-being for the entire family.
Ali, S. B., & Aziz, R. A. (2018). Penjagaan Tidak Formal Warga Tua: Antara Tanggungjawab dan Beban. e-BANGI Journal, 13(3).
Arasu, S., & Shanbhag, D. (2021). Quality of life and burden of caregiving among the primary caregivers of children with disability in rural Karnataka. Journal of Family Medicine and Primary Care, 10(8), 2804-2809.
Asa, G. A., Fauk, N. K., Ward, P. R., & Mwanri, L. (2020). The psychosocial and economic impacts on female caregivers and families caring for children with a disability in Belu District, Indonesia. PloS one, 15(11), e0240921.
Cantero-Garlito, P. A., Moruno-Miralles, P., & Flores-Martos, J. A. (2020). Mothers who take care of children with disabilities in rural areas of a Spanish region. International journal of environmental research and public health, 17(8), 2920.
Casey, J., Gittins, L., & McDonald, R. (2016). Impact of wheelchair provision upon parent caregivers: A qualitative study. In Wheelchairs: Perceptions, Technology Advances and Barriers (pp. 51-80). Nova Science Publishers, Inc.
Chen, L., Fan, H., & Chu, L. (2019). The hidden cost of informal care: An empirical study on female caregivers' subjective well-being. Social Science & Medicine, 224, 85-93.
Cohen, S. A., Sabik, N. J., Cook, S. K., Azzoli, A. B., & Mendez-Luck, C. A. (2019). Differences within differences: Gender inequalities in caregiving intensity vary by race and ethnicity in informal caregivers. Journal of Cross-Cultural Gerontology, 34, 245-263.
De Lorient, S. R., Setiawati, Y., Hidayati, H. B., & Rejeki, P. S.(nd). Relationship between Sociodemographic Factors and Caregiver Burden Among Mothers of Elementary School Students with ADHD Symptoms in Surabaya: A Cross-sectional Study. Age, 8(9), 10
Dizaho, E. K., Salleh, R., & Abdullah, A. (2016). The impact of work-family conflict on working mothers’ career development: A review of literature. Australian Journal of Basic and Applied Sciences, 10(11), 328-334.
Galal Abdelrahman, R., Ibrahim El-Malky, M., & Mohamed Barakat, M. (2022). Psychological Distress and Coping Strategies among Parents with Deaf and Mute Children. Journal of Nursing Science Benha University, 3(1), 637-651.
Gates, L. B., & Akabas, S. H. (2012). Meeting the Demands of Work and Responsibilities of Caring for a Child with Asthma: Consequences for Caregiver Well-being. Journal of Social Service Research, 38(5), 656–671. doi:10.1080/01488376.2012.709481
Geuze, L., & Goossensen, A. (2021). Exploring the experiences of Dutch parents caring for children with profound intellectual and multiple disabilities: A thematic analysis of their blogs. Global Qualitative Nursing Research, 8, 23333936211028170.
Guimarães, A., Pereira, A., Oliveira, A., Lopes, S., Nunes, A. R., Zanatta, C., & Rosário, P. (2023). Parenting in cerebral palsy: understanding the perceived challenges and needs of parents of elementary school children. International Journal of Environmental Research and Public Health, 20(5), 3811.
Isa, S. N. I., Ishak, I., Ab Rahman, A., Saat, N. Z. M., Din, N. C., Lubis, S. H., ... & Suradi, N. R. M. (2021). Quality of life among caregivers of children with special needs in Kelantan, Malaysia: The importance of psychosocial mediators. The Malaysian Journal of Medical Sciences: MJMS, 28(2), 128.
Ismail, K. F., Martine, S. E., Ahmad, A., Harith, S., Lua, P. L., & Ibrahim, W. P. W. (2023). Association of Sociodemographic, clinical and feeding characteristics with quality of life among caregivers of disabled children in Terengganu, Malaysia. Malaysian Journal of Public Health Medicine, 23(1), 207–217.
Keville, S., Zormati, P., Shahid, A., Osborne, C., & Ludlow, A. K. (2023). Parent perspectives of children with selective mutism and co-occurring autism. International Journal of Developmental Disabilities, 1-11.
Kim, H. K., & Park, C. H. (2023). Effects of General Characteristics, Emotional Labor, Empathy Ability, and Wisdom on the Psychological Well-being of Female Caregivers Visiting the Homes of Vulnerable Care Recipients and the Elderly. Behavioral Sciences, 13(5), 360.
Kim, Y., Mitchell, H. R., & Ting, A. (2019). Application of psychological theories on the role of gender in caregiving to psycho?oncology research. Psycho?Oncology, 28(2), 228–254.
Marcinechová, D., Záhorcová, L., & Lohazerová, K. (2024). Self-forgiveness, guilt, shame, and parental stress among parents of children with autism spectrum disorder. Current Psychology, 43(3), 2277-2292.
Marquis, S., Hayes, M. V., & McGrail, K. (2019). Factors Affecting the Health of Caregivers of Children with an Intellectual/Developmental Disability. Journal of Policy and Practice in Intellectual Disabilities. Doi:10.1111/jppi.12283
Mbugua, M. N., Kuria, M. W., & Ndetei, D. M. (2011). The prevalence of depression among family caregivers of children with intellectual disability in a rural setting in Kenya. International journal of family medicine, 2011(1), 534513.
McLeod, J. D. (2023). Invisible disabilities and inequality. Social Psychology Quarterly, 86(1), 6-29.
Minichil, W., Getinet, W., Derajew, H., & Seid, S. (2019). Depression and associated factors among primary caregivers of children and adolescents with mental illness in Addis Ababa, Ethiopia. BMC Psychiatry, 19, 1-9.
Mwei, K. (2015). The caregiver experience: Raising a child with a mental health condition.
Nestler, K., Witzki, A., Rohde, U., Rüther, T., Tofaute, K. A., & Leyk, D. (2017). Strength Training for Women as a Vehicle for Health Promotion at Work: A Systematic Literature Review. Deutsches Aerzteblatt International, 114(26), 439.
Opoku, M. P., Nketsia, W., Benefo, E. B., & Mprah, W. K. (2022). Understanding the parental experiences of raising deaf children in Ghana. Journal of Family Studies, 28(4), 1235-1254.
Ostman, M., Kjellin, L. (2002) Stigma by associa- tion: psychological factors in relatives of people with mental illness. Br J Psychiatry 181: 494 – 498
Papadopoulos, D. (2023). Impact of Child and Family Factors on Caregivers' Mental Health and Psychological Distress during the COVID-19 Pandemic in Greece. Children, 11(1), 7.
Rodríguez-Madrid, M. N., del Río-Lozano, M., Fernandez-Peña, R., Jiménez-Pernett, J., García-Mochón, L., Lupiañez-Castillo, A., & García-Calvente, M. D. M. (2019). Gender differences in social support received by informal caregivers: A personal network analysis approach. International Journal of Environmental Research and Public Health, 16(1), 91.
Rössler, W. (2016). The stigma of mental disorders: A millennia?long history of social exclusion and prejudices. EMBO reports, 17(9), 1250-1253.
Ruiz, I. J., & Nicolás, M. M. (2018). The family caregiver: The naturalised sense of obligation in women to be caregivers. Enfermería Global, 17(49), 434-447.
Salleh, N. S., Abdullah, K. L., Yoong, T. L., Jayanath, S., & Husain, M. (2020). Parents' experiences of affiliate stigma when caring for a child with autism spectrum disorder (ASD): A meta-synthesis of qualitative studies. Journal of Pediatric Nursing, 55, 174–183. https://doi.org/10.1016/j.pedn.2020.09.002
Scott, E. K. (2010). "I Feel as if I Am the One Who Is Disabled" The Emotional Impact of Changed Employment Trajectories of Mothers Caring for Children with Disabilities. Gender & Society, 24(5), 672–696.
Soga, M., & Gaston, K. J. (2020). The ecology of human–nature interactions. Proceedings of the Royal Society B, 287(1918), 20191882.
Statistik Pendaftaran Oku. (n.d.). Jabatan Kebajikan Masyarakat. https://www.jkm.gov.my/jkm/index.php?r=portal/full&id=ZUFHVTB1NnJWM0EreGtwNC9Vb1hvdz09
Tathgur, M. K., & Kang, H. K. (2021). Challenges of the Caregivers in Managing a Child with autism Spectrum Disorder—a Qualitative analysis. Indian journal of psychological medicine, 43(5), 416-421.
Tseng, M. H., Chen, K. L., Shieh, J. Y., Lu, L., Huang, C. Y., & Simeonsson, R. J. (2016). Child characteristics, caregiver characteristics, and environmental factors affecting the quality of life of caregivers of children with cerebral palsy. Disability and rehabilitation, 38(24), 2374-2382.
Werner, S., & Shulman, C. (2014). Does type of disability make a difference in affiliate stigma among family caregivers of individuals with autism, intellectual disability or physical disability? Journal of Intellectual Disability Research, 59(3), 272–283. doi:10.1111/jir.12136
Yakubu, Y. A., & Schutte, D. W. (2018). Caregiver attributes and sociodemographic determinants of caregiving burden in selected low-income Cape Town, South Africa communities. Journal of Compassionate Health Care, 5, 1-10.
Y?lmaz, G. G., Abao?lu, H., Demirok, T., & Ak?, E. Caregiving Children with Visually Impairments: Occupational Balance and Quality of Life Perspective. International Journal of Disabilities Sports and Health Sciences, 6(2), 111-118.
Zhou, Z., Wang, Y., Feng, P., Li, T., Tebes, J. K., Luan, R., & Yu, Y. (2021). Associations of caregiving knowledge and skills with caregiver burden, psychological well-being, and coping styles among primary family caregivers of people living with schizophrenia in China. Frontiers in psychiatry, 12, 631420.
Zuurmond, M., Nyante, G., Baltussen, M., Seeley, J., Abanga, J., Shakespeare, T., ... & Bernays, S. (2019). A support programme for caregivers of children with disabilities in Ghana: Understanding the impact on the well-being of caregivers. Child: Care, Health and Development, 45(1), 45–53.
Sufferi, N. H. M., Abdullah, W. A. W., & Ashari, A. (2024). Factors Affecting Psychological Well-Being of Female Caregivers to Children with Disabilities: A Conceptual Paper. International Journal of Academic Research in Business and Social Sciences, 14(10), 1945–1958.
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