ISSN: 2226-6348
Open access
Evidence indicates that the transition process to adulthood represents a critical and confusing time in the life of any person with intellectual disabilities (PWID). However, PWID often experiences adaptive functioning deficits that negatively impact an individual's ability to achieve independence. Many previous studies only focus on persons with physical disabilities and place less emphasis on the empowerment of independent living for PWID. Therefore, this systematic literature review, guided by the publication standard Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA), tries to identify the factors that could affect PWID to live independently. This study selected articles using two databases: Scopus and Web of Sciences, from 2017 to 2020, resulting in a total of 607 articles. Overall, only 28 selected articles were discussed in this review after the quality appraisal process using Mixed Methods Appraisal Tool (MMAT). In sum, this systematic review found two main themes: individual factors and environmental factors. For individual factors, there are four sub-themes: gender, cognitive ability, self-attitudes and skills. Whereas, for environmental factors, there are eight sub-themes family, community, policy, technology, economy, health, education and geographical location. Thus, this study contributes to the conceptual framework for future research involving independent living for PWID.
Agarwal, R., Heron, L., & Burke, S. L. (2021). Evaluating a postsecondary education program for students with intellectual disabilities: Leveraging the parent perspective. Journal of Autism and Developmental Disorders, 51(7), 2229-2240.
American Association of Mental Retardation (AAMR). (2002). Mental Retardation Definition, Classification and Systems of Supports (10th ed.). Washington, DC
Anderson, I., Theakstone, D. D., & Lawrence, J. (2020). Inclusive social lettings practice: Opportunities to enhance independent living for disabled people. Social Inclusion, 8(3), 54-65.
Bennett, R., Vijaygopal, R., & Kottasz, R. (2019). Willingness of people with mental health disabilities to travel in driverless vehicles. Journal of Transport & Health, 12, 1-12.
Bolt, D. (2010). The Starfish Paradigm: Impairment, Disability, and Characterization in Bobbie Ann Mason’s ‘Shiloh’. The Midwest Quarterly, 52(11).
Bouck, E. C., Long, H. M., & Costello, M. P. (2020). Parent and Youth Post-School Expectations: Students with Intellectual Disability in Rural Schools. Rural Special Education Quarterly, 40(1), 14-23.
Brown, M., Harry, M., & Mahoney, K. (2018). “It's like two roles we're playing”: Parent perspectives on navigating self?directed service programs with adult children with intellectual and/or developmental disabilities. Journal of Policy and Practice in Intellectual Disabilities, 15(4), 350-358.
Callus, A. M., Bonello, I., Mifsud, C., & Fenech, R. (2019). Overprotection in the lives of people with intellectual disability in Malta: Knowing what is control and what is enabling support. Disability & Society, 34(3), 345-367.
Cano, A. R., Garcia-Tejedor, A. J., Alonso-Fernandez, C., & Fernandez-Manjon, B. (2019). Game analytics evidence-based evaluation of a learning game for intellectual disabled users. IEEE Access, 7, 123820-123829.
Chan, W., Smith, L. E., Hong, J., Greenberg, J. S., Lounds Taylor, J., & Mailick, M. R. (2018). Factors associated with sustained community employment among adults with autism and co-occurring intellectual disability. Autism, 22(7), 794-803.
Chou, Y. C., Palmer, S. B., Wehmeyer, M. L., & Skorupski, W. P. (2017). Comparison of self? determination of students with disabilities: Multivariate and discriminant function analyses. Journal of Intellectual Disability Research, 61(2), 144-154.
Collier, M., Griffin, M. M., & Wei, Y. (2017). Learning from students about transition needs: Identifying gaps in knowledge and experience. Journal of Vocational Rehabilitation, 46(1), 1-10.
Conrad, J. A. (2020). On intellectual and developmental disabilities in the United States: A historical perspective. Journal of Intellectual Disabilities, 24(1), 85-101.
Cullen, J. M., Simmons?Reed, E. A., & Weaver, L. (2017). Using 21st century video prompting technology to facilitate the independence of individuals with intellectual and developmental disabilities. Psychology in the Schools, 54(9), 965-978.
Dell’Armo, K. A., & Tasse, M. J. (2019). The role of adaptive behavior and parent expectations in predicting post-school outcomes for young adults with intellectual disability. Journal of autism and developmental disorders, 49(4), 1638-1651.
Dimitriadou, I., & Kartasidou, L. (2017). The role of support systems for the independence of individuals with intellectual disabilities. International Journal of Pedagogy and Curriculum, 24(3), 39-48.
Ellenkamp, J. J., Brouwers, E. P., Embregts, P. J., Joosen, M. C., & van Weeghel, J. (2016). Work environment-related factors in obtaining and maintaining work in a competitive employment setting for employees with intellectual disabilities: A systematic review. Journal of occupational rehabilitation, 26(1), 56-69.
Feng, M. C., Murphy, M. R., & Mlinac, M. (2017). Independent living capacity evaluation in home-based primary care: Considerations and outcomes of a quality improvement project. Clinical gerontologist, 40(1), 51-62.
Flemming, K., Booth, A., Garside, R., Tunçalp, O., Noyes, J. (2018). Qualitative evidence synthesis for complex interventions and guideline development: clarification of the purpose, designs and relevant methods. BMJ Global Health (in press).
Gadd, T. (2020). Person?centred respite supports: The perspectives of adults with intellectual disabilities in Ireland. British Journal of Learning Disabilities, 48(4), 281-290.
Haddaway, N. R., Macura, B., Whaley, P., & Pullin, A. S. (2018). ROSES: Reporting standards for Systematic Evidence Syntheses: pro forma, flow-diagram and descriptive summary of the plan and conduct of environmental systematic reviews and systematic maps. Environmental Evidence, 7(1), 1-8.
Hassiotis, A., Walsh, A., Budgett, J., Harrison, I., Jones, R., Morant, N., & Lloyd-Evans, B. (2020). Intensive support for adults with intellectual disability and behaviours that challenge: a survey of provision and service typologies in England. BJPsych open, 6(2). Higgins, J.P.T., Green, S., 2011. Cochrane Handbook for Systematic Reviews of Interventions. Retrieved from. https://handbook-5-1.cochrane.org/.
Ho, P., Bulsara, C., Patman, S., Bulsara, M., Downs, J., & Hill, A. M. (2018). Investigating falls in adults with intellectual disability living in community settings and their experiences of post-fall care services: protocol for a prospective observational cohort study. BMC geriatrics, 18(1), 1-9.
Houseworth, J., Stancliffe, R. J., & Ticha, R. (2018). Association of state-level and individual-level factors with choice making of individuals with intellectual and developmental disabilities. Research in developmental disabilities, 83, 77-90.
Ioanna, D. (2018). Independent living of individuals with intellectual disability: a combined study of the opinions of parents, educational staff, and individuals with intellectual disability in Greece. International Journal of Developmental Disabilities, 1–7. https://doi.org/10.1080/20473869.2018.1541560
Jansen-van Vuuren, J., & Aldersey, H. M. (2020). Stigma, acceptance and belonging for people with IDD across cultures. Current developmental disorders reports, 7(3), 163-172.
Janson, A. L., Moen, A., & Aure, C. F. (2021). Introducing a nutritional app in supervised residences for independent living: Experiences of individuals with intellectual disabilities and their caregivers. Journal of Applied Research in Intellectual Disabilities, 34(1), 55-64.
Johansson, M., Bjorne, P., Runesson, I., & Ahlstrom, G. (2017). Healthy ageing in people with intellectual disabilities from managers’ perspective: a qualitative study. In Healthcare (Vol. 5, No. 3, p. 45). Multidisciplinary Digital Publishing Institute.
John, A., Bailey, L. E., & Jones, J. L. (2017). Culture and context: Exploring attributions and caregiving approaches of parents of children with an intellectual disability in urban India. Child & Family Social Work, 22(2), 670-679.
Kilincaslan, A., Kocas, S., Bozkurt, S., Kaya, I., Derin, S., & Aydin, R. (2019). Daily living skills in children with autism spectrum disorder and intellectual disability: A comparative study from Turkey. Research in developmental disabilities, 85, 187-196.
Kitchenham, B. A., Charters, S. M. (2007). Guidelines for performing systematic literature reviews in software engineering. EBSE Technical Report.
Martinic, K. M., Pieper, D., Glatt, A., & Puljak, L. (2019). Definition of a systematic review used in overviews of systematic reviews, meta-epidemiological studies and textbooks. BMC medical research methodology, 19(1), 1-12.
Lin, S. W., Chiu, T. Y., Liou, T. H., Yen, C. F., & Chen, H. G. (2020). The relationship of urbanization and performance of activity and participation functioning among adults with developmental disabilities in Taiwan. International Journal of Environmental Research and Public Health, 17(20), 7553.
Lockwood, C., Munn, Z., & Porritt, K. (2015). Qualitative research synthesis: methodological guidance for systematic reviewers utilizing meta-aggregation. JBI Evidence Implementation, 13(3), 179-187.
Neuman, R. (2020). Parents' perceptions regarding couple relationships of their adult children with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 33(2), 310-320.
Okoli, C., (2015). A guide to conducting a standalone systematic literature review. Commun. Assoc. Inf. Syst. 37, 879e910.
Park, J. Y., & Park, E. Y. (2019). Factors affecting the acquisition and retention of employment among individuals with intellectual disabilities. International Journal of Developmental Disabilities, 1-14.
Radzi, N. F. M. (2020). Do Job Coach Effective to PWDs Secured a Job in Malaysia. Jurnal Aplikasi Manajemen, Ekonomi dan Bisnis, 4(2), 13-21.
Roos, E., & Sondenaa, E. (2020). Improving the transition process to independent living for adolescents with profound intellectual disabilities. Experiences of parents and employees. BMC health services research, 20(1), 1-12.
Ryan, J. B., Randall, K. N., Walters, E., & Morash-MacNeil, V. (2019). Employment and independent living outcomes of a mixed model post-secondary education program for young adults with intellectual disabilities. Journal of Vocational Rehabilitation, 50(1), 61-72.
Samsuddin, S. F., Shaffril, H. A. M., & Fauzi, A. (2020). Heigh-ho, heigh-ho, to the rural libraries we go! - a systematic literature review. Library and Information Science Research, 42(1). https://doi.org/10.1016/j.lisr.2019.100997
Schmidt, P., Egermann, M., Sauerland, C., & Schulte, A. G. (2021). Caries Experience of Adults with Intellectual Disability in the Western Part of Germany. Journal of Clinical Medicine, 10(12), 2602.
Shaffril, H. A. M., Ahmad, N., Samsuddin, S. F., Samah, A. A., & Hamdan, M. E. (2020). Systematic literature review on adaptation towards climate change impacts among indigenous people in the Asia Pacific regions. Journal of cleaner production, 258, 120595.
Shaffril, H. A. M., Samah, A. A., Samsuddin, S. F., & Ali, Z. (2019). Mirror-mirror on the wall, what climate change adaptation strategies are practiced by the Asian's fishermen of all? Journal of Cleaner Production, 232, 104-117.
Simpson, N., Mizen, L., & Cooper, S. A. (2020). Intellectual disabilities. Medicine, 48(11), 732-736.
Stancliffe, R. J., & Anderson, L. L. (2017). Factors associated with meeting physical activity guidelines by adults with intellectual and developmental disabilities. Research in developmental disabilities, 62, 1-14.
Terras, M. M., Boyle, E. A., Ramsay, J., & Jarrett, D. (2018). The opportunities and challenges of serious games for people with an intellectual disability. British Journal of Educational Technology, 49(4), 690-700.
Thomas, C. (2001). The body and society: some reflections on the concept’s disability and impairment. In Watson, N. and Cunningham-Burley, S. (eds) Reframing the Body. London: Palgrave.
Thomas, C. (2004). How is disability understood? An examination of sociological approaches. Disability and Society, 19(6), 569–83.
Thomas, C. (2007). Sociologies of Disability and Illness: Contested Ideas in Disability Studies and Medical Sociology. Basingstoke: Palgrave Macmillan.
Thompson, C., Bölte, S., Falkmer, T., & Girdler, S. (2018). To be understood: Transitioning to adult life for people with autism spectrum disorder. PloS one, 13(3), e0194758.
Tranfield, D., Denyer, D., & Smart, P. (2003). Towards a methodology for developing evidence?informed management knowledge by means of systematic review. British journal of management, 14(3), 207-222.
Vaismoradi, M., Turunen, H., Bondas, T. (2013). Content analysis and thematic analysis: implications for conducting a qualitative descriptive study. Nurs. Health Sci. 15 (3), 398e405.
Whittemore, R., Knafl, K. (2005). The integrative review: Updated methodology. J. Adv. Nurs. 52 (5), 546e553.
Williams, E. M., Thrift, S., & Rose, J. (2018). The subjective experiences of women with intellectual disabilities and offending behaviour: exploring their experiences of ‘home’. International Journal of Developmental Disabilities, 64(3), 132-143.
In-Text Citation: (Zambri et al., 2023)
To Cite this Article: Zambri, I. M., Amin, A. S., Kamil, N. K. M., Akhir, N. M., Sutan, R., Khairuddin, K. F., & Abdullah, W. A. W. (2023). Factor Affecting Independent Living of Persons with Intellectual Disabilities: A Systematic Review. International Journal of Academic Research in Progressive Education and Development, 12(1), 623–644.
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