Defining the Meaning of Independent Living among Persons with Intellectual Disabilities: A Systematic Literature Review

Agarwal, R., Heron, L., & Burke, S. L. (2020). Evaluating a postsecondary education program for students with intellectual disabilities: Leveragind the parent perspective. Journal of Autism and Developmental Disorders, 2019(0123456789). https://doi.org/10.1007/ s10803-020-04676-0
Baart, J., & Taaka, F. (2017). Barriers to healthcare services for people with disabilities in developing countries: A literature review. Disability, CBR and Inclusive Development, 26–40. https://doi.org/10.5463/DCID.v29i4.656
Barrera, C., Santos, O. C., Gutiérrez, E., Boticario, J. G., Moranchel, J., Roldán, J. R., & Casas, R. (2009). Empowering disabled people: E-learning challenges for independent life. CEUR Workshop Proceedings, 495, 38–44.
Bigby, C., Bould, E., & Beadle-Brown, J. (2017). Conundrums of supported living: The experiences of people with intellectual disability. Journal of Intellectual and Developmental Disability, 42(4), 309–319. https://doi.org/10.3109/13668250 .2016.1253051
Birkle, C., Pendlebury, D. A., Schnell, J., & Adams, J. (2020). Web of Science as a data source for research on scientific and scholarly activity. Quantitative Science Studies, 1(1), 363–376. https://doi.org/10.1162/qss_a_00018
Björnsdóttir, K., Stefánsdóttir, Á., & Stefánsdóttir, G. V. (2017). People with Intellectual Disabilities Negotiate Autonomy, Gender and Sexuality. Sexuality and Disability, 35(3), 295–311. https://doi.org/10.1007/s11195-017-9492-x
Björnsdóttir, K., Stefánsdóttir, G. V., & Stefánsdóttir, A. (2015). "It's my life": Autonomy and people with intellectual disabilities. Journal of Intellectual Disabilities, 19(1), 5–21. https://doi.org/10.1177/1744629514564691
Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101.
Brisenden, S. (1986). Independent Living and the Medical Model of Disability. Disability, Handicap & Society, 1(2), 173–178. https://doi.org/10.1080/02674648666780171
Budde, J. F., & Bachelder, J. L. (1986). Independent Living: The Concept, Model, and Methodology. Journal of the Association for Persons with Severe Handicaps, 11(4), 240–245. https://doi.org/10.1177/154079698601100403
Burke, M. M., Eun Lee, C., Hall, S. A., & Rossetti, Z. (2019). Understanding decision making among individuals with intellectual and developmental disabilities (IDD) and their siblings. Intellectual and Developmental Disabilities, 57(1), 26–41. https://doi.org/ 10.1352/1934-9556-57.1.26
Burnham, J. F. (2006). Scopus database: A review. Biomedical Digital Libraries, 3, 1–8. https://doi.org/10.1186/1742-5581-3-1
Conder, J. A., & Mirfin-Veitch, B. F. (2020). "Getting by": People with learning disability and the financial responsibility of independent living. British Journal of Learning Disabilities, 48(3), 251–257. https://doi.org/10.1111/bld.12329
CRPD. (2015). Disability Inclusive Meetings: An Operational Guide. In United Nations Economic and Social Commission for Asia and the Pacific.
DiGennaro Reed, F. D., Strouse, M. C., Jenkins, S. R., Price, J., Henley, A. J., & Hirst, J. M. (2014). Barriers to Independent Living for Individuals with Disabilities and Seniors. Behavior Analysis in Practice, 7(2), 70–77. https://doi.org/10.1007/s40617-014-0011-6
Engwall, K. (2017). "I'm too old to think five years ahead". Parent carers of adult children with intellectual disabilities in Sweden. Alter, 11(3), 155–167. https://doi.org/10.1016/j. alter.2017.05.005
Fullana, J., Pallisera, M., & Díaz-Garolera, G. (2019). How do people with learning disabilities talk about professionals and organizations? Discourse on support practices for independent living. Disability and Society, 34(9–10), 1462–1480. https://doi.org/10. 1080/09687599.2019.1594701
Fullana, J., Pallisera, M., Vilà, M., Valls, M. J., & Díaz-Garolera, G. (2019). Intellectual disability and independent living: Professionals' views via a Delphi study. Journal of Intellectual Disabilities, 24(4), 433–447. https://doi.org/10.1177/1744629518824895
Höglund, B., & Larsson, M. (2019). Ethical dilemmas and legal aspects in contraceptive counselling for women with intellectual disability—Focus group interviews among midwives in Sweden. Journal of Applied Research in Intellectual Disabilities, 32(6), 1558–1566. https://doi.org/10.1111/jar.12651
Hudnall, J. E. (2014). Parents' Dreams for Their Young Adults with Down syndrome: What Resources are Needed to Achieve Them? ProQuest Dissertations and Theses, 97. https://search.proquest.com/docview/1540823572?accountid=10910%0Ahttp://flinders-primo.hosted.exlibrisgroup.com/openurl/61FUL/FUL_SERVICES_PAGE??url_ver =Z39.88-2004&rft_val_fmt=info:ofi/fmt:kev:mtx:dissertation&genre=dissertations+% 26+theses&sid=ProQ:ProQ
Iriarte, E. G., McConkey, R., & Vilda, D. (2020). Family experiences of personalised accommodation and support for people with intellectual disability. Journal of Intellectual Disabilities, 174462952090520. https://doi.org/10.1177/1744629520905207
King, E., Okodogbe, T., Burke, E., McCarron, M., McCallion, P., & O'Donovan, M. A. (2017). Activities of daily living and transition to community living for adults with intellectual disabilities. Scandinavian Journal of Occupational Therapy, 24(5), 357–365. https://doi.org/10.1080/11038128.2016.1227369
Longtin, V., Dufour, S., & Morin, D. (2020). Typology of community living transition for people with intellectual disabilities: Are the current experience in rehabilation centers tied to the best practices? Journal of Policy and Practice in Intellectual Disabilities, 17(2), 176–184. https://doi.org/10.1111/jppi.12331
McConkey, R., & Craig, S. (2017). Changes over 12 years in residential provision for adult persons with intellectual disabilities in Ireland.
Mendis, K. (2015). One size does not fit all: the educational needs of children in out-of-home care. Adoption & Fostering, 39(2), 135–144. https://doi.org/10.1177/030857 5915588721
Miller, K. D., Schleien, S. J., White, A. L., & Harrington, L. (2018). "Letting Go:" Parent perspectives in the outcomes of an inclusive postsecondary education experience for studentd with developmental disabilities. Journal of Postsecondary Education and Disability, 31(3), 267–285.
Miskimmin, C., Shooshtari, S., Menec, V., Duncan, K. A., Martin, T., & Stoesz, B. M. (2019). Age-friendly communities for older persons with intellectual disabilities. Quality in Ageing and Older Adults, 20(4), 206–218. https://doi.org/10.1108/QAOA-11-2018-0058
Mohamed, S. l. H. A., Ahmad, N., Samsuddin, S. F., Samah, A. A., & Hamdan, M. E. (2020). Systematic literature review on adaptation towards climate change impacts among indigenous people in the Asia Pacific regions. Journal of Cleaner Production, 258, 120595. https://doi.org/10.1016/j.jclepro.2020.120595
Mohamed, S. l. H. A., Samsuddin, S. F., & Abu Samah, A. (2020). The ABC of systematic literature review: the basic methodological guidance for beginners. Quality and Quantity, 0123456789. https://doi.org/10.1007/s11135-020-01059-6
Mongeon, P., & Paul-Hus, A. (2016). The journal coverage of Web of Science and Scopus: a comparative analysis. Scientometrics, 106(1), 213–228. https://doi.org/10.1007/s11192-015-1765-5
Mooney, F., Rafique, N., & Tilly, L. (2019). Getting involved in the community—What stops us? Findings from an inclusive research project. British Journal of Learning Disabilities, 47(4), 241–246. https://doi.org/10.1111/bld.12283
Morris, J. (2004). Independent living and community care: A disempowering framework. Disability and Society, 19(5), 427–442. https://doi.org/10.1080/0968759042000235280
Neuman, R. (2020). Parents' perceptions regarding couple relationships of their adult children with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 33(2), 310–320. https://doi.org/10.1111/jar.12674
Pallisera, M., Fullana, J., Puyaltó, C., & Vilà, M. (2016). Changes and challenges in the transition to adulthood: views and experiences of young people with learning disabilities and their families. European Journal of Special Needs Education, 31(3), 391–406. https://doi.org/10.1080/08856257.2016.1163014
Pallisera, M., Vilà, M., Fullana, J., Díaz-Garolera, G., Puyalto, C., & Valls, M. J. (2018). The role of professionals in promoting independent living: Perspectives of self-advocates and front-line managers. Journal of Applied Research in Intellectual Disabilities, 31(6), 1103–1112. https://doi.org/10.1111/jar.12470
Petticrew, M., & Roberts, H. (2008). Systematic Reviews in the Social Sciences: A Practical Guide. In Systematic Reviews in the Social Sciences: A Practical Guide. https://doi.org/10.1002/9780470754887
Power, A., & Bartlett, R. (2018). 'I shouldn't be living there because I am a sponger': negotiating everyday geographies by people with learning disabilities. Disability and Society, 33(4), 562–578. https://doi.org/10.1080/09687599.2018.1436039
Puyaltó, C., & Pallisera, M. (2018). Living Independently in Spain: Barriers and Supports from the Views of People with Intellectual Disabilities. International Journal of Disability, Development and Education, 67(3), 306–319. https://doi.org/10.1080/1034912X. 2018.1546833
Ratzka, A. (2007). Independent living for people with disabilities?: from patient to citizen and customer. Independent Living Institute.
Richardson, L., Beadle-Brown, J., Bradshaw, J., Guest, C., Malovic, A., & Himmerich, J. (2016). I felt that I deserved it - Experiences and implications of disability hate crime. Tizard Learning Disability Review, 21(2), 80–88. https://doi.org/10.1108/TLDR-03-2015-0010
Roberts, H., Ingold, A., Liabo, K., Manzotti, G., Reeves, D., & Bradby, H. (2018). Moving on: Transitions out of care for young people with learning disabilities in England and Sweden. British Journal of Learning Disabilities, 46(1), 54–63. https://doi.org/10.1111/bld.12211
Salmon, N., Garcia Iriarte, E., Donohoe, B., Murray, L., Singleton, G., Barrett, M., & Dillon, M. (2019). Our Homes: An inclusive study about what moving house is like for people with intellectual disabilities in Ireland. British Journal of Learning Disabilities, 47(1), 19–28. https://doi.org/10.1111/bld.12251
Samsuddin, S. F., Shaffril, H. A. M., & Fauzi, A. (2020). Heigh-ho, heigh-ho, to the rural libraries we go! - a systematic literature review. Library and Information Science Research, 42(1). https://doi.org/10.1016/j.lisr.2019.100997
Shree, A., & Shukla, P. C. (2016). Intellectual Disability: Definition, classification, causes and characteristics. Learning Community-An International Journal of Educational and Social Development, 7(1), 9. https://doi.org/10.5958/2231-458x.2016.00002.6
Swerts, C., Vandevelde, S., VanDerNagel, J. E. L., Vanderplasschen, W., Claes, C., & De Maeyer, J. (2017). Substance use among individuals with intellectual disabilities living independently in Flanders. Research in Developmental Disabilities, 63, 107–117. https://doi.org/10.1016/j.ridd.2016.03.019
Voss, H., Vogel, A., Wagemans, A. M. A., Francke, A. L., Metsemakers, J. F. M., Courtens, A. M., & de Veer, A. J. E. (2019). What is important for advance care planning in the palliative phase of people with intellectual disabilities? A multi-perspective interview study. Journal of Applied Research in Intellectual Disabilities, 33(2), 160–171. https://doi.org/10.1111/jar.12653
Williams, V., & Porter, S. (2017). The meaning of "choice and control" for people with intellectual disabilities who are planning their social care and support. Journal of Applied Research in Intellectual Disabilities, 30(1), 97–108. https://doi.org/10.1111/jar.12222
Witsø, A. E., & Hauger, B. (2020). 'It's our everyday life' – The perspectives of persons with intellectual disabilities in Norway. Journal of Intellectual Disabilities, 24(2), 143–157. https://doi.org/10.1177/1744629518774174
Witsø, A. E., & Kittelsaa, A. M. (2018). Active adult lives for persons with learning disabilities—The perspectives of professionals. British Journal of Learning Disabilities, 46(1), 10–16. https://doi.org/10.1111/bld.12207
World Bank. (2021). Disability Inclusion Concept Overview. https://www.worldbank. org/en/topic/disability#:~:text=Results-,One billion people%2C or 15%25 of the world's population%2C,million people%2C experience significant disabilities.
World Health Organization. (2011). World Report on Disability. https://doi.org/10.1136 /ip.2007.018143

In-Text Citation: (Kamil et al., 2022)
To Cite this Article: Kamil, N. K. M., Amin, A. S., Akhir, N. M., Sutan, R., Badayai, A. R. A., Khairuddin, K. F., Abdullah, W. A. W., & Zambri, I. M. (2022). Defining the Meaning of Independent Living among Persons with Intellectual Disabilities: A Systematic Literature Review. International Journal of Academic Research in Progressive Education and Development, 11(1), 471–487.

Copyright: © 2022 The Author(s)
Published by HRMARS (www.hrmars.com)
This article is published under the Creative Commons Attribution (CC BY 4.0) license. Anyone may reproduce, distribute, translate and create derivative works of this article (for both commercial and non-commercial purposes), subject to full attribution to the original publication and authors. The full terms of this license may be seen at: http://creativecommons.org/licences/by/4.0/legalcode